Article Data

  • Views 698
  • Dowloads 157

Original Research

Open Access

Measuring the Impact of Quality of Life of Children Treated for Orofacial Clefts: A Case-Control Study

  • Tannure PN1,*,
  • Soares FMM1
  • Küchler EC1
  • Motta LG1
  • Costa MC1
  • Granjeiro JM1

1Department of Pediatric Dentistry and Orthodontics, School of Dentistry, Federal University of Rio de Janeiro, RJ, Brazil

DOI: 10.17796/jcpd.37.4.f185423j04m66753 Vol.37,Issue 4,July 2013 pp.381-384

Published: 01 July 2013

*Corresponding Author(s): Tannure PN E-mail: pntannure@gmail.com

Abstract

The aim of this study was to assess the quality of life (QoL) of children previously treated for cleft lip and/or palate (CL/P) and compare with non-cleft children. Method: A case-control study with 70 children between 5 and 12 years old was carried out. The case group consisted of 35 individuals previously treated for non-syndromic CL/P and presently receiving assessment at a rehabilitation hospital in Brazil. The children had received primary surgical treatment for CL/P reconstruction during early childhood. The control group consisted of 35 healthy children selected to ensure close similarity to the cleft group in age, gender and socioeconomic status. QoL was measured using the AUQEI questionnaire. Results: Cleft lip and palate had no significant influence on the QoL in children (p=0.44). A higher percentage of the cleft lip and palate group of children reported a lower QoL than the cleft lip or cleft palate groups. Gender had no significant difference on the quality of life in CL/P children (p=0.2) and in control group (p=1.0). Conclusion: The QoL in children with CL/P was found to be similar to the non-cleft group. Our results confirm that clefts repaired during earlier childhood associated with a health care program, including psychological support, is beneficial for CL/P children

Keywords

cleft lip; cleft lip and or palate; cleft palate; child; quality of life

Cite and Share

Tannure PN,Soares FMM,Küchler EC,Motta LG,Costa MC,Granjeiro JM. Measuring the Impact of Quality of Life of Children Treated for Orofacial Clefts: A Case-Control Study. Journal of Clinical Pediatric Dentistry. 2013. 37(4);381-384.

References

1. Murray JC. Gene/environment causes of cleft lip and/or palate. Clin Genet;61:248-56. 2002.

2. Wyszynski DF, Wu T. Prenatal and perinatal factors associated with isolated oral clefting. Cleft Palate Craniofac J; 39:370-5. 2002

3. Habel A, Sell D, Mars M. Management of cleft lip and palate. Arch Dis Child; 74:360-6. 1996.

4. Broder HL, Smith FB, Strauss RP. Habilitation of patients with clefts: parent and child ratings of satisfaction with appearance and speech. Cleft Palate Craniofac J;29:262-7. 1992.

5. Yazdy MM, Honein MA, Rasmussen SA, Frias JL. Priorities for future public health research in orofacial clefts. Cleft Palate Craniofac J; 44:351-7. 2007.

6. Manificat S, Dazord A, Cochat P, Nicolas J. [Evaluation of the quality of life in pediatrics: how to collect the point of view of children]. Arch Pediatr;4:1238-46. 1997.

7. Assumpcao FB, Jr., Kuczynski E, Sprovieri MH, Aranha EM. [Quality of life evaluation scale (AUQEI--Autoquestionnaire Qualite de Vie Enfant Image). Validity and reliability of a quality of life scale for children 4 to 12 years-old]. Arq Neuropsiquiatr; 58:119-27. 2000.

8. Manificat S, Dazord A, Cochat P, Morin D, Plainguet F, Debray D. Quality of life of children and adolescents after kidney or liver transplantation: child, parents and caregiver’s point of view. Pediatr Transplant; 7:228-35. 2003.

9. Neiva PD, Kirkwood RN, Godinho R. Orientation and position of head posture, scapula and thoracic spine in mouth-breathing children. Int J Pediatr Otorhinolaryngol;73:227-36. 2009.

10. Castelo PM, Barbosa TS, Gaviao MB. Quality of life evaluation of children with sleep bruxism. BMC Oral Health; 10:16. 2010.

11. de Oliveira CM, Araujo AP. Self-reported quality of life has no correlation with functional status in children and adolescents with spinal muscular atrophy. Eur J Paediatr Neurol; 15:36-9. 2011.

12. Locker D, Jokovic A, Tompson B. Health-related quality of life of children aged 11 to 14 years with orofacial conditions. Cleft Palate Craniofac J;42:260-6. 2005.

13. Topolski TD, Edwards TC, Patrick DL. Quality of life: how do adolescents with facial differences compare with other adolescents? Cleft Palate Craniofac J; 42:25-32. 2005.

14. Damiano PC, Tyler MC, Romitti PA, Momany ET, Jones MP, Canady JW, et al. Health-related quality of life among preadolescent children with oral clefts: the mother’s perspective. Pediatrics; 120:e283-90. 2007.

15. Kramer FJ, Gruber R, Fialka F, Sinikovic B, Schliephake H. Quality of life and family functioning in children with nonsyndromic orofacial clefts at preschool ages. J Craniofac Surg; 19:580-7. 2008.

16. Kramer FJ, Gruber R, Fialka F, Sinikovic B, Hahn W, Schliephake H. Quality of life in school-age children with orofacial clefts and their families. J Craniofac Surg; 20:2061-6. 2009.

17. Harrison MJ, Boonen A, Tugwell P, Symmons DP. Same question, different answers: a comparison of global health assessments using visual analogue scales. Qual Life Res 2009.

18. Edwards TC, Patrick DL, Topolski TD, Aspinall CL, Mouradian WE, Speltz ML. Approaches to craniofacial-specific quality of life assessment in adolescents. Cleft Palate Craniofac J; 42:19-24. 2005.

19. Hurrelmann K. Health promotion for adolescents: preventive and corrective strategies against problem behavior. J Adolesc; 13:231-50. 1990.

Abstracted / indexed in

Science Citation Index Expanded (SciSearch) Created as SCI in 1964, Science Citation Index Expanded now indexes over 9,500 of the world’s most impactful journals across 178 scientific disciplines. More than 53 million records and 1.18 billion cited references date back from 1900 to present.

Biological Abstracts Easily discover critical journal coverage of the life sciences with Biological Abstracts, produced by the Web of Science Group, with topics ranging from botany to microbiology to pharmacology. Including BIOSIS indexing and MeSH terms, specialized indexing in Biological Abstracts helps you to discover more accurate, context-sensitive results.

Google Scholar Google Scholar is a freely accessible web search engine that indexes the full text or metadata of scholarly literature across an array of publishing formats and disciplines.

JournalSeek Genamics JournalSeek is the largest completely categorized database of freely available journal information available on the internet. The database presently contains 39226 titles. Journal information includes the description (aims and scope), journal abbreviation, journal homepage link, subject category and ISSN.

Current Contents - Clinical Medicine Current Contents - Clinical Medicine provides easy access to complete tables of contents, abstracts, bibliographic information and all other significant items in recently published issues from over 1,000 leading journals in clinical medicine.

BIOSIS Previews BIOSIS Previews is an English-language, bibliographic database service, with abstracts and citation indexing. It is part of Clarivate Analytics Web of Science suite. BIOSIS Previews indexes data from 1926 to the present.

Journal Citation Reports/Science Edition Journal Citation Reports/Science Edition aims to evaluate a journal’s value from multiple perspectives including the journal impact factor, descriptive data about a journal’s open access content as well as contributing authors, and provide readers a transparent and publisher-neutral data & statistics information about the journal.

Scopus: CiteScore 2.0 (2022) Scopus is Elsevier's abstract and citation database launched in 2004. Scopus covers nearly 36,377 titles (22,794 active titles and 13,583 Inactive titles) from approximately 11,678 publishers, of which 34,346 are peer-reviewed journals in top-level subject fields: life sciences, social sciences, physical sciences and health sciences.

Submission Turnaround Time

Conferences

Top